Well, this is the first post of doing something I said I'd never do! I've always said that I will never write a blog, never say never right?
The last couple of weeks have not been easy, of course, and we anticipate things being up and down for a long time to come. We have recently started to tell people about Tanner's diagnosis and prognosis; sometimes it's easier than others. That's one of the hardest things - telling people and knowing there's nothing we can say to make it easier. Jon description of it seemed appropriate, it just seems so violent, telling people about this leukodystrophy and that there is no cure.
I guess this is a good place to add some prayer requests. We really appreciate everyone's prayers. It means a lot and reminds us that things are not hopeless. We have an amazing God who can and will use this for His glory! So, that's one prayer request, that we continue to bring everything to Him, our tears, our worries & fears, and that through it all He is glorified! Another one is for sleep, some nights are better than others, but, I think some good sleep would help a lot!
So, there you have it, our first blog post. Thanks for reading and for caring.
Shelly
