Thank you so much for your prayers for our visit today. It was a good visit. We didn't get the answers that I was expecting today (though I knew that my expectations were high, I was still disappointed), but, we will hopefully get some answers when we return in December.
The doctor was very thorough and attentive and would like to find us a definitive answer to exactly what type of white matter disease that Tanner has. One thing we wanted to happen was for all of the MRI's to be compared to each other. What a blessing, he will be sending them to a specialist in Amsterdam that is knowledgeable in leukodystrophy to review them. He is also running one additional test at this time (another kind of white matter disease) that was not previously done.
We feel very comfortable with him and the plans to evaluate the MRI's and then go from there. We had a nice day together as a family and enjoyed some good fishing back home this evening. It was an exciting day for Tanner since he finally lost his top tooth (he's been working on it for a while). Jon and I were discussing at dinner how Tanner probably thinks that it's normal to go see different doctors all the time - we're a little tired of the trips, but, it doesn't seem to bother him, thankfully.
Thanks again for your love and support for our family!
3 comments:
I am soo blessed to know you guys and to be able to work with Tanner. He has taught me lessons that I will never forget. And you Shelly have taught me the true meaning of "Blessed be the name of the Lord." Thanks for allowing me to share this incredible journey with you!! I am glad that you are closer to answers and that you continue to hold on to that unseen hand. I continue to pray for you and Jon. Especially for Tanner. What an Amazing Kiddo!!!......
Love you guys! Thanks for sharing your story! We are praying for you and know that God will be glorified....He already is!! You guys are such a blessing to us....we love Tanner and are so thankful for his life! =)
So glad the trip at least offered hope for answers, if not the answers themselves right now. Praying for you guys!
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