Friday, May 1, 2009

2 years ago....

Two years ago today we were in the courthouse for Tanner's adoption! To celebrate we will be going out to dinner (Tanner's choice: sushi) and watching the adoption video. What a joyous occasion! We love to talk about Tanner's adoption and how he became part of our family. It's such a beautiful picture of becoming a part of God's family!

We're going to have a fun weekend filled with parties. Tonight we'll celebrate his adoption, tomorrow is Tanner's birthday party, and then Monday is his 8th birthday! It's so great to celebrate Tanner.

So many changes have occurred over the last 2 years (including him growing several inches!) Some are wonderful, some are sad, but, they are all memories that have happened together as a family.

Today I kissed an angel. I knew it from the start.
The first time my angel smiled at me; I gave away my heart.

Today I kissed an angel; this angel child of mine
Though not of my creation, My child by God's design.

Today I kissed an angel; My heart is dancing wild;
Our family, by a miracle; Blessed by our angel child.
Brenda Meece

Wednesday, April 8, 2009

Bikes, Bluebonnets & Bloody noses

Don't worry, despite the title, there are no graphic pictures involved.

Here are several pictures of Tanner's new bikes. The red one is his new bike that we bought a couple of weeks ago. Jon added training wheels to it, but, Tanner is still having a hard time riding it (he can't balance it well and his reaction time is too slow to catch himself before falling). Jon's working on some ideas for bigger training wheels. Then, last weekend we were at Jon's parents celebrating family birthdays, where Tanner had fun riding cousin Tyler's bike. So now, Tyler is letting Tanner borrow his bike for a while. He loves riding it every day and enjoys loading sticks, rocks, flowers (aka weeds), and more into the trailer.
We made it out while the bluebonnets were still blooming this year! Tanner liked it for a few minutes until he realized there were stickers (aka prickers) in the grass! Hattie didn't like them either & needed to be carried (yes, she's a little spoiled!)


On to the bloody noses (don't worry - no pictures here!) Tanner has started up with chronic nose bleeds again, so, he's scheduled for a surgical procedure this Friday (April 10th) to cauterize some blood vessels that are too close to the surface. Hopefully he'll recover quickly and can be distracted by the circus on Friday night!

We've recently decided to take a break from occupational and physical therapy. Though we miss our therapists and friends there, it's so great to be able to be home every day after school for the first time in 4 years!! I think this will be a good break for Tanner to be able to come home and play, do homework, go to the library, etc. We'll have him re-evaluated again in a couple of months and see if there's been any change and decide where to go from there.

It's been a little over a year since Tanner's leukodystrophy diagnosis. Throughout the year we've seen some regression, including the chronic & worsening headaches & migraines (which seem to be better controlled right now with an added medication! He's had no migraines for 3 weeks, yeah!!), and, some progression in other areas. We're so thankful that he doesn't seem to be having too much cognitive decline!

Spring and Easter time are such a beautiful time of the year to remind us about new life. We were recently working on our yard and I realized we didn't do much yard work last year because of our focus on Tanner's situation. This spring, we're cleaning up old leaves and things from the last 2 years, it's a lot more work, but the end result is a beautiful yard where we can enjoy beautiful creation. It kind of feels like our lives too, things are dark and dreary, but, underneath there's new growth that's green and turning into something new! Despite the dark times, there are also bright times as well, that show new growth that come only because of what has been there covering it for the past year. I think that God has been using Tanner's situation to help us appreciate life so much more. This spring, it's nice to be able to be a little less focused on the disease, and more focused on spending time together, enjoying each other, laughing more, playing more and learning to love each other better!

This is, of course, not the year we had planned nor expected, but, it's truly been a good year. A lot of good memories, new experiences, and more lessons in learning how to depend daily on the only truly dependable One!

Happy Easter! He is risen!

Friday, March 27, 2009

Bonaire!

We had a fabulous spring break on the island of Bonaire. What an amazing and memorable week. Along with us on the trip were, Kyle and Audra, Kyle's parents Bill and Janet, and our friends and dive experts, Tammie and Tracy.

We stayed at a beautiful resort that Tanner had figured out in no time. He knew where everything was and walked around like he owned the place. He made friends with everyone there, including all the animals! He liked waving and signing hello to all the iguanas, hermit crabs, birds, crab and fish. He enjoyed knowing where to go, who was staying where, and leading us all around.

We saw amazing and beautiful things while scuba diving and Tanner had a great time with Bill and Janet while we were diving every morning. Tanner absolutely loved snorkeling and seeing all the beautiful fish and coral.

Tanner behaved so well all week. We couldn't have asked for him to be any better! We were so thankful that he didn't have any migraines (he had one the night before we left which reassured us that he probably wouldn't have one while we were gone).

One of Tanner's favorite activities was watching the cruise ships come and go every day. He never tired of watching them and loved explaining how the ropes came out, hooked up to shore and how they pulled the ropes in again to leave every evening.

The Walsh's and Tanner visited a group of people with disabilities one day. There were many crafts that they made, and Tanner was convinced he needed a painting of "the sunset, the ocean and the sand." There's a picture below of him with the lady that painted the picture. He is so proud of it, he carried it with him everywhere!

Well, I could go on and on, but, the pictures say it better! Here are a just a few!


Wednesday, March 4, 2009

Waiting

Wow - it's already March! We've had a busy few weeks that included a marriage retreat for parents of adoptive children and a visit from our friend Charity (pictures are of Charity's visit). We had a great time with her here and Tanner was very disappointed when she left (in fact, he woke up at 4am the night after she left and signed that he missed her and wanted her to come back). The trip was too short, but, memorable.

One evening this week Tanner was in the dining room while Jon was at a meeting and I was in the kitchen. He came to get me and urgently told me to follow him, then banged on the window and was signing "look outside, look! The sky is pink, the sunset in the sky!" He was thrilled to be looking at the sunset and we went outside and enjoyed the sunset together! The next morning he was just as excited to enjoy the beautiful sunrise. What a great reminder from Tanner to be thankful and enjoy things that we often don't even think twice about!

In less than 2 weeks it will be spring break and we will be enjoying a trip to Bonaire! Tanner is excited to use his new passport and go to a different country. We are going with friends and looking forward to seeing the Caribbean both from on top and underneath - while scuba diving! We're excited to go somewhere new and experience it with Tanner (he's not old enough to dive yet, but maybe snorkeling :)).

Tanner has continued having migraines. Two weeks ago we ended up in the ER because his vomiting from the migraine wouldn't stop. They were able to give him IV meds to stop the vomiting and the headache. Last week the neurologist added a new medicine that will hopefully help.

I've heard the song "While I'm Waiting" by John Waller a lot on the radio lately (from the movie Fireproof). I hear it and often think of Tanner and that it feels like we're always waiting. Waiting for answers (that may never come), waiting for him to feel better, waiting to see if he gets worse, and so on. The song reminds me to worship, and through the pain and waiting, continue to be focusing on our Creator and remember that He knows and is with us while we are waiting. It also reminds me that I don't need to just be waiting, but, enjoying what we have while we're waiting. In case you haven't heard it, here are the words from the song:
I'm waiting
I'm waiting on You, Lord
And I am hopeful
I'm waiting on You, Lord
Though it is painful
But patiently, I will wait

I will move ahead, bold and confident
Takeing every step in obedience
While I'm waiting
I will serve You
While I'm waiting
I will worship
While I'm waiting
I will not faint
I'll be running the race
Even while I wait

I'm waiting
I'm waiting on You, Lord
And I am peaceful
I'm waiting on You, Lord
Though it's not easy
But faithfully, I will wait
Yes, I will wait
I will serve You while I'm waiting
I will worship while I'm waiting
I will serve You while I'm waiting
I will worship while I'm waiting
I will serve you while I'm waiting
I will worship while I'm waiting on You, Lord

Wednesday, February 11, 2009

Health Update

Our latest update isn't the greatest one. Tanner's headaches have been getting worse. The migraines seem to occur much more often. He of course is an amazing boy and still rarely complains. He wants to do everything and doesn't let the pain stop him. Today, he didn't want to go to school and that told us a lot, he NEVER wants to miss school.

At this point no one really has any answers and there's not much we can do. It's of course, very difficult to watch him suffer and we wish there was more we could do. It makes us fearful for the future, but, we are so thankful for such a strong little boy, because he tolerates things so well, it helps us continue to go on.

Thank you for your love and prayers. We rest in remembering II Cor. 12:9 " 'My grace is sufficient for you, for my power is made perfect in weakness.' Therefore I will boast all the more gladly about my weaknesses, so that Christ's power may rest on me."