This picture of Tanner and his student teacher was on the Bryan ISD website when their class released Painted Lady butterflies that they had watched change from caterpillars.
As I added this picture it reminded me of what our life feels like right now. It kind of feels like we're in the cocoon at this time. It's a dark place, our future is unknown, yet we are held tightly and securely as we wait. Eventually, we will become a beautiful butterfly, and the end result of what our Father has created us to be. I think that for Jon and myself, it will be a very long process, but, for Tanner, he's becoming that butterfly much sooner. His beauty will shine much earlier than ours and hopefully through that, Tanner will teach others about his Creator. He will be complete in God's perfect timing, and it will be both beautiful and painful at the same time.
Thank you so much for your continued thoughts, offers of support, love and prayers. We are both overwhelmed and supported by them. We feel that your love and prayers help us to not feel hopeless. Despite the hopelessness of the diagnosis itself, we truly do not feel that way because of the reassurance that our life is in His complete control.
I just wanted to write a quick update and let you know that we will be going to see Tanner's neurologist in Temple tomorrow (Tues. April 22). It is actually a follow-up appointment for his headaches (that seem to be under control with the Topamax). We have asked the doctor to compare Tanner's MRI from 2 years ago to a recent MRI to see what kind of changes have taken place in his brain. This would hopefully help us to know how fast or slow the degeneration could take place. It could also not show anything at this time.
We would appreciate your prayers tomorrow. We are both nervous about what we may find out, or what we won't find out. We would also like to be able to remember all of our questions and to feel comfort and peace regardless of what we hear tomorrow, specifically if we don't hear anything new!
We will keep you posted with what we find out, it just may not be much of anything.
Thanks again for all your love,
Jon & Shelly