Thank you so much for your prayers for our visit today. It was a good visit. We didn't get the answers that I was expecting today (though I knew that my expectations were high, I was still disappointed), but, we will hopefully get some answers when we return in December.
The doctor was very thorough and attentive and would like to find us a definitive answer to exactly what type of white matter disease that Tanner has. One thing we wanted to happen was for all of the MRI's to be compared to each other. What a blessing, he will be sending them to a specialist in Amsterdam that is knowledgeable in leukodystrophy to review them. He is also running one additional test at this time (another kind of white matter disease) that was not previously done.
We feel very comfortable with him and the plans to evaluate the MRI's and then go from there. We had a nice day together as a family and enjoyed some good fishing back home this evening. It was an exciting day for Tanner since he finally lost his top tooth (he's been working on it for a while). Jon and I were discussing at dinner how Tanner probably thinks that it's normal to go see different doctors all the time - we're a little tired of the trips, but, it doesn't seem to bother him, thankfully.
Thanks again for your love and support for our family!